We Won't Be Home for Christmas

Some of you know what is going on, others are wondering what is going on from Facebook hints. This is to update everyone about the events of the past few days.

Our Amelia has always been small, she’s tracked at about the fifth percentile since being born. But this isn’t unusual if you’ve seen us and our families – we’re not large people. However, we began to be concerned as her developmental progress was definitely behind. She is 8 months old now and just able to sit – but not perfectly, she has a couple cases of rolling over but never much and hasn’t shown any interest, and she only began grabbing and playing with objects in the last month or so.

On Thursday, December 16, Susanna took Amelia to the doctor to check in on these concerns and we found out she had fallen in weight below her track. Over the next couple of days we attempted to feed her more as she’s started eating solids.

On Tuesday, December 21 Susanna took her back to the doctor to check in on progress – but instead of any progress she’d lost an additional 3 oz. We admitted her then to Long Island College Hospital for testing and observation.

Our plan had been to drive to Atlanta for Christmas – I had just picked up a rental car when I received the call from Susanna that she would be admitted to the hospital, and we were told here to expect about a week in the hospital – Christmas at the hospital.

So far they have done blood and urine tests and everything has checked out ok. She does have “excess tone” as the doctors keep saying. Basically she is a bit rigid and the problem is especially that the tone in her tongue makes it difficult for her to eat. What they do not know yet is did the weight loss come as a result of or is it a cause of the excess tone.

They’ve put a feeding tube through the nose to monitor exactly how much goes in and see how she responds. She has already gained 4 oz and today they increased the amount of formula from 2 oz every 3 hours to 3 oz every 3 hours.

Various specialists are looking at things – they are trying to minimize poking and prodding, but based on analysis she may have some additional testing.

The goal right now is to get her weight up and stabilized, then to determine causes and solutions in order to correct and maintain going forward.

As I was already scheduled for vacation – Susanna has been able to stay at the hospital with Amelia while I go back and forth and take care of Micah and Ellie. Susanna’s mom is also flying up, arriving on Christmas Eve to stay for a week.

Through all of the excitement we are also trying to hobble together a Christmas for the kids. Many of our gifts had been shipped to Atlanta – my parents are shipping them back. We will likely try to transport our stuff here to the hospital – maybe take over the play room as things have been quiet.

We appreciate the support and prayers from everyone. Thank you to Ben and Franci for bringing us dinner last night and Christmas decorations today. Thank you to Pastor Murphy for stopping by to pray for us and Danny who is bringing food tonight. Also to Mel for helping my hobble together some of Susanna’s Christmas gifts (her main gift WAS going to be a night on a chattanooga riverboat). And of course family – my parents for shipping stuff up and ┬áSusanna’s mom for flying up to help last minute!

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19 Responses to We Won't Be Home for Christmas

  1. Betty says:

    I have been praying for y’all constantly. Thank you for the update!

  2. Thanks for the update Rick. We’re keeping everyone in our prayers during this time. Too bad we’re not closer to help out and watch the kids, but we can offer up prayers on you guys’ behalf to Him who is in control and His arms reach out farther and stronger than we can imagine!

  3. Adrienne says:

    Rick and Susanna, We love you both and your sweet little family so much and we want you to know that we are right there with you in our hearts. We will be lifting up Amelia to the Lord in prayer.

  4. I agree. Have been praying constantly for all of you, in a tiring and anxious time.

    Much love!

    Pat, Maryanne and Kids

  5. Aileen says:

    Praying for you all. Please keep us updated. Hugs to all

    Aileen

  6. Anna says:

    Thank you for the update! I saw Susanna’s Facebook statuses, and wondered what was happening with sweet Amelia. We will be praying for your family this Christmas.

  7. Thinking of you all. Love you all very much. xoox

  8. You will be in my prayers and thoughts.

  9. jchallies says:

    I hope when Mimi arrives you guys can salvage Christmas, at least to some extent. In her absence I will attempt to make the traditional croissants.
    Thanks for taking good care of my daughter, Rick.

    dad

  10. We are praying for all of you. We will miss you for sure, but Amelia’s health is most important. Glad to hear she is getting such good care. Thanks to all who are local and are helping out with babysitting, food, etc. It is very hard for Grandma to be so far away and not be able to help out. :) But we trust God’s orchestration of all events, He is in control. Praying you get rest and that you have a very special Christmas in spite of these challenges. Give Micah and Ellie and Amelia hugs and kisses from Grandma. And love to you both too, Rick and Susanna.

  11. Maud says:

    Dear Susanna, dear Rick,
    I have been a “silent” reader of your blog for a while.
    I sincerely hope things will turn out alright for your little Amelia.
    Wishing you all a Merry Christmas and a Happy New Year! Sending lots of positive spirit and energy during these difficult times.
    Take care,
    Maud

  12. Jen says:

    Coming out of “lurking”-found you via Maryanne’s blog–to wish you a happy Christmas, full of thanks that you are together-even if it’s in a hospital room and that you are surrounded by people who love you and care for you. Praying that fear and disappointment won’t put a damper on your celebration of Christ’s birth.

    And, most of all, praying that sweet Amelia will bounce back quickly, and the doctors will be able to pinpoint the issue and remedy the situation quickly. Praying that you remember that our God loves Amelia more than you could ever begin to imagine and that HE is good–ALL the time!
    Merry, merry CHRISTmas!

  13. Grace says:

    Praying for you. Hope you have a Merry Christmas despite the circumstances. Wish we could be there with you guys. love you.

  14. Rose family….praying for little Amelia and your whole family. May God surround you at this time and heal your sweet girl. Chanteal

  15. Franci says:

    You are so welcome! We continue to pray.

  16. Brenda says:

    Thankful that God who takes care of the birds of the air has also orchestrated medical help and many loving people to surround you in your time of need. May God grant Amelia health, and the doctors much insight into how to care for her. May God also continue to bless you as parents, and give you much strength and wisdom for the days ahead. ~ Isaiah 40:31 ~ Thoughts are with you during this Christmas season.

  17. Alina says:

    Praying for you guys!

  18. bchallies says:

    May God continue to care for our sweet tiny girl…

  19. Exactly as Mom said. So many people love and care for you. And for teeny-tiny, too.

    Love and love!

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