With an army of over 60 prayer warriors so far responding to the challenge of fasting and prayer for Amelia this is a shock and awe campaign! We are overwhelmed as more and more people sign up and the notes of encouragement keep rolling in, people letting us know they are in prayer, etc.
Day 2 report
Praise God, day 2 began with Amelia downing a full bottle in about 10 minutes! And with very little spilling back out of her mouth. At the end of the first day I was ready to despair as her total formula consumption was just a few oz – but she doubled that to start the day!
Amelia did as well as we can expect at this stage, taking 2+ bottles plus solids at each meal. She swallowed the bottles well, the solids are still dribbling out of her mouth for the most part and it is more difficult to gage how much she actually took in.
What is she supposed to have?
Amelia was born in the 5th percentile for weight. As long as a child stays on track the percentile number doesn’t matter – a decline or gain is the worry. In December she dropped below the 3rd percentile. Since being out of the hospital she has gained at an appropriate rate but without making up ground, thus continuing to track at the 3rd percentile.
Our feeding plan on the pump for the past few weeks consisted of three 8oz feedings with 5 scoops of formula, plus one 8oz bottle of PediaSure. This was based upon a caloric diet aimed at a weight a bit higher than the 5th percentile.
To sustain her current weight, would require 700 calories – though when I think about what that means I just don’t remember Micah or Ellie eating that much either. We’ve heard it said, and it would seem to make sense, that individual bodies will process differently. In any case, we still have a long way to go to move Amelia from a couple snack-like meals to solid eating habits. In the interim we are packing as many calories into small amounts as possible.
What to pray for
Pray that Amelia will trend upward each day – gaining in the quantity and quality of her feedings.
Pray that Amelia’s ability to swallow would solidify and that what goes in would not dribble back out. Sometimes she seems to be impatient and before she swallows she is opening her mouth and it dribbles out. Sometimes she makes deliberate actions to spit. But sometimes she swallows just fine.
Pray that we would understand her and how to best get her to feed and swallow. That what we do would provide the maximum opportunity for success. That we would be patient, hopeful, and determined.
Pray that Micah and Ellie would entertain themselves at feeding times and that life in general would not interfere with our ability to focus on feedings
Amelia has a bit of the sniffles, pray that she would not get anything more that would prevent her from moving forward and that she would certainly not throw anything up. On the feeding tube she seemed to go through cycles of weeks fine and then a time of throwing up often.
Pray that God would sustain her and multiple the calories entering her body beyond what they should normally achieve – that her energy would remain high as she must necessarily receive less while she works to ramp up what she can take in.
Pray that Amelia will understand her bodies hunger signals, understand food as a means of satisfaction and something she would want more and more of. She does not have the sensory experience of a normal baby and needs to learn what would otherwise be instinctual.
Pray this for Amelia:
“At the end of ten days it was seen that they were better in appearance and fatter in flesh than all the youths who ate the king’s food.” -Daniel 1:15
We shared this already on Facebook, but we decided to read through Daniel during this period and there on day 1 God gave us this verse – in an identical time period God had already done such a work!